25-10-2017, 08:25 AM
21
Re: Stamina
Originally Posted by Surfermom
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Good grief, terribly sorry to hear about the decline in your counts, UJ. What is the mechanism that would the chemotherapy do to increase your counts? I always thought that chemo caused thrombocypenia or could make it worse. Wouldn't a transfusion help in the short run?I hope you get some sort of treatment soon. It has to be frustrating!
I was told at the time that I had a virus which was causing the Thrombocytopenia and therefore Chemo-therapy would destroy this particular virus. It is possible that the Chemo damped it down without killing it off altogether and after the chemo stopped the virus has returned.
Re Transfusions, yes they helped, whilst I was in hospital in March they gave me five bags of Plasma - this pushed my platelet levels above 50,000 which enabled them to discharge me and treat me as an out-patient.
Will now be doing yet another blood test next Monday prior to seeing Consultant next Tuesday.
28-10-2017, 01:56 PM
23
Re: Stamina
Originally Posted by Uncle Joe
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Well p*ssed off!!! - Went on demonstration this morning in support of the NHS - there was to be a march too from the place where the demonstration began down through the town to the Conference Centre (The Labour Party are holding there conference here this week). Thrombocytopenia has robbed me of all my energy and stamina and I was unable to join the march, much to my chagrin.Will now have to come to terms with the fact I am no longer able to attend demonstrations and marches
These days I tend to avoid crowds both through my anxiety issues and fear of catching something nasty.
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