16-03-2014, 04:19 PM
24
Re: Motor Neurone Disease
Thanks Jem, it is one bast**d of a disease as your whole body just shuts down while your mind is still active and alive. Right at the end it is awful the nerve sensors just stop working and no muscle in any part of your body works. There is no cure and no medication to slow it down it is the mother of all horrors.
17-03-2014, 05:54 PM
26
Re: Motor Neurone Disease
Feeling panic today, didn't sleep well, Keith is unbelievable, he is so serene about the whole thing. I have spoken to the MND Association and they give a great deal of help and support so we don't have to deal with this thing alone. Friends and family have been getting in touch and sometimes their reaction can be difficult to handle but most of the time I feel supported. Thank you all for your words.
17-03-2014, 06:36 PM
27
Re: Motor Neurone Disease
Originally Posted by Cookiecate
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I have spoken to the MND Association and they give a great deal of help and support so we don't have to deal with this thing alone. Friends and family have been getting in touch and sometimes their reaction can be difficult to handle but most of the time I feel supported.
18-03-2014, 12:14 AM
30
Re: Motor Neurone Disease
Originally Posted by Cookiecate
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Feeling panic today, didn't sleep well, Keith is unbelievable, he is so serene about the whole thing. I have spoken to the MND Association and they give a great deal of help and support so we don't have to deal with this thing alone. Friends and family have been getting in touch and sometimes their reaction can be difficult to handle but most of the time I feel supported. Thank you all for your words.
I think it is often much harder being the relative than being the patient. You are well and you are looking at someone you love who has this horrible diagnosis and you just wish you could make it right but you can't. He has a disease which he will no doubt fight in his own way, but the onlookers can't help but feel a sense of helplessness.
Some friends and relatives will probably be a bit frightened by it and not sure how to react, but that is their problem not yours. Just try to get on with living life with your husband day to day.
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