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Twink55
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Twink55 is offline
Cheshire, England
Joined: Jun 2015
Posts: 16,510
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29-05-2017, 04:32 PM
11

Re: Fibromyalgia

Originally Posted by Older git ->
Twink I was not getting cross with you. Just seen fibro. A good friend of mine has it,together with other problems. Seen her crippled with pain,seen her thinking how to pay the bills when her benefits get cut. That was making me cross.
I know it is awful, but I do think that a lot of the pain is caused by being unhappy with life. When you are feeling ill all your other problems make it more difficult to handle. That is why I think friends and family could help more.
Enya
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Suffolk
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29-05-2017, 09:54 PM
12

Re: Fibromyalgia

Originally Posted by Twink55 ->
My sister has fibromyalgia and they give her lots of controlled pain killers, but are they the answer, because they frequently don't work?
This disease is also called Yuppie Flu, possible a derogatory name, but I really believe the illness is caused by the mind. I am not talking rubbish here because many doctors believe that your state of mind can cause pain and tiredness. I often wonder if a lack of endorphins can cause the pain and fatigue .
I have recently had an horrendous chest infection, which is now on the mend, but while I was suffering I noticed pains all over my body, that I had never had before and extreme tiredness. The pains that I felt were nothing to do with my chest infection, but now I am able to breathe easier and relax more they seem to be disappearing.
I think that putting a fancy name on complaints makes people believe they are really ill... which doesn't help, but making life easier and happier for them often makes their pains less, or non existent. Don't forget that pain is your body's way of telling you there is something wrong, but the problem often doesn't come from where you feel the pain.
Doc, try removing some of your partners pressures in life and make a supreme effort to make her happy... then see if her pains are as bad.
This is just a suggestion but it has worked for many people I know.....including myself when I was fighting cancer. Happiness didn't cure my cancer, but my oncologist strongly believes that the positive approach I had to it, significantly contributed to my ability to deal with it..... and so do I.
I would also like to say " well said Tessa" I believe your approach is the best!
I feel your thread about fibro, thinking it's caused by the mind is not right at all. Being a sufferer for over 10 years, my pain has never been good when I'm happy and painful when I'm not, it's painful as and when.
I have flare ups which is when it is most painful but generally there is always a dull ache. Been through various courses of tablets, but tablets are not the cure to the problem, it needs to run alongside gentle exercise, physiotherapy and if you can asked to be referred to a pain management clinic, they will help you understand and manage your pain along with drugs and if your really unfortunate a procedure that the clinic recommends and works with you.
Doc holiday should and I hope he is, understand his partner illness, Read up on it, suggest things that she could manage/do together.
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Twink55
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Twink55 is offline
Cheshire, England
Joined: Jun 2015
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30-05-2017, 07:21 AM
13

Re: Fibromyalgia

[QUOTE=Enya;1161424]
Originally Posted by Twink55 ->
My sister has fibromyalgia and they give her lots of controlled pain killers, but are they the answer, because they frequently don't work?
This disease is also called Yuppie Flu, possible a derogatory name, but I really believe the illness is caused by the mind. I am not talking rubbish here because many doctors believe that your state of mind can cause pain and tiredness. I often wonder if a lack of endorphins can cause the pain and fatigue .
I have recently had an horrendous chest infection, which is now on the mend, but while I was suffering I noticed pains all over my body, that I had never had before and extreme tiredness. The pains that I felt were nothing to do with my chest infection, but now I am able to breathe easier and relax more they seem to be disappearing.
I think that putting a fancy name on complaints makes people believe they are really ill... which doesn't help, but making life easier and happier for them often makes their pains less, or non existent. Don't forget that pain is your body's way of telling you there is something wrong, but the problem often doesn't come from where you feel the pain.
Doc, try removing some of your partners pressures in life and make a supreme effort to make her happy... then see if her pains are as bad.
This is just a suggestion but it has worked for many people I know.....including myself when I was fighting cancer. Happiness didn't cure my cancer, but my oncologist strongly believes that the positive approach I had to it, significantly contributed to my ability to deal with it..... and so do I.
I would also like to say " well said Tessa" I believe your approach is the best![/QUOTE

I feel your thread about fibro, thinking it's caused by the mind is not right at all. Being a sufferer for over 10 years, my pain has never been good when I'm happy and painful when I'm not, it's painful as and when.
I have flare ups which is when it is most painful but generally there is always a dull ache. Been through various courses of tablets, but tablets are not the cure to the problem, it needs to run alongside gentle exercise, physiotherapy and if you can asked to be referred to a pain management clinic, they will help you understand and manage your pain along with drugs and if your really unfortunate a procedure that the clinic recommends and works with you.
Doc holiday should and I hope he is, understand his partner illness, Read up on it, suggest things that she could manage/do together.
My sister also suffers pain, at different levels, all of the time. She attends lots of pain clinics and takes regular controlled pain killers, which give little, if any, relief.
When you have a big operation in hospital they often give you morphine, which relieves much pain. Why don't you look up how painkillers work and tell me why they frequently don't on pain from Fibromyalgia?
I am not going to argue with you about whether being stress free and content helps people deal with pain, because many doctors believe it does, based on research. I certainly notice that when my sister's mind is focused on important things, that make her happy, she complains less and is able to do more.... all pain comes from the brain so if the brain is otherwise occupied it isn't surprising that they feel less pain.
Enya
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30-05-2017, 07:54 AM
14

Re: Fibromyalgia

Painkillers are not a cure.
medications along with rheumatologist, neurologist and pshycologist help/treatment.
I just stated that my fibro happens wether I'm in a stressful state of mind or a stress free state of mind. As many fibro sites explain no two people are the same that suffer from this.
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Twink55
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Twink55 is offline
Cheshire, England
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30-05-2017, 07:58 AM
15

Re: Fibromyalgia

Originally Posted by Enya ->
Painkillers are not a cure.
medications along with rheumatologist, neurologist and pshycologist help/treatment.
I just stated that my fibro happens wether I'm in a stressful state of mind or a stress free state of mind. As many fibro sites explain no two people are the same that suffer from this.
I agree, that is why I believe in trying anything that won't harm you, to try and make you feel better.
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Docholliday
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Norfolk UK
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01-06-2017, 03:51 PM
16

Re: Fibromyalgia

[QUOTE=Enya;1161424]
Originally Posted by Twink55 ->
My sister has fibromyalgia and they give her lots of controlled pain killers, but are they the answer, because they frequently don't work?
This disease is also called Yuppie Flu, possible a derogatory name, but I really believe the illness is caused by the mind. I am not talking rubbish here because many doctors believe that your state of mind can cause pain and tiredness. I often wonder if a lack of endorphins can cause the pain and fatigue .
I have recently had an horrendous chest infection, which is now on the mend, but while I was suffering I noticed pains all over my body, that I had never had before and extreme tiredness. The pains that I felt were nothing to do with my chest infection, but now I am able to breathe easier and relax more they seem to be disappearing.
I think that putting a fancy name on complaints makes people believe they are really ill... which doesn't help, but making life easier and happier for them often makes their pains less, or non existent. Don't forget that pain is your body's way of telling you there is something wrong, but the problem often doesn't come from where you feel the pain.
Doc, try removing some of your partners pressures in life and make a supreme effort to make her happy... then see if her pains are as bad.
This is just a suggestion but it has worked for many people I know.....including myself when I was fighting cancer. Happiness didn't cure my cancer, but my oncologist strongly believes that the positive approach I had to it, significantly contributed to my ability to deal with it..... and so do I.
I would also like to say " well said Tessa" I believe your approach is the best![/QUOTE

I feel your thread about fibro, thinking it's caused by the mind is not right at all. Being a sufferer for over 10 years, my pain has never been good when I'm happy and painful when I'm not, it's painful as and when.
I have flare ups which is when it is most painful but generally there is always a dull ache. Been through various courses of tablets, but tablets are not the cure to the problem, it needs to run alongside gentle exercise, physiotherapy and if you can asked to be referred to a pain management clinic, they will help you understand and manage your pain along with drugs and if your really unfortunate a procedure that the clinic recommends and works with you.
Doc holiday should and I hope he is, understand his partner illness, Read up on it, suggest things that she could manage/do together.
Hi Enya.. Yes i do understand my partners problem have read much on it and do help all i can we seem to cope together fine.
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Zuleika
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North West UK
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20-06-2019, 03:24 PM
17

Re: Fibromyalgia

Originally Posted by Twink55 ->
No need to get cross, my sisters hospital doctor told her that Fibromyalgia is sometimes called Yuppie Flu.
All pain is generated by the brain when your body is aware that something is wrong and sends messages to it..... but it doesn't have to be a physical problem, malfunctions in the brain can cause pain where there is no health problem!
That doctor is wrong . It was CFS that was given that nickname in the 80’s ,was also known as ME, which stands for myalgic encephalomyelitis.
I mean it’s an arrogance to suggest a person could have a malfunction in the brain causing her to have crippling pain and that it could be because she’s unhappy, so just do this and that to distract yourself!
I’ m sure all the people suffering from this most painful condition where every movement hurts somewhere would agree .
Susan68
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27-07-2019, 09:34 AM
18

Re: Fibromyalgia

When I've been researching RA I've seen Fibromyalgia included on their sites as a form of arthritis or central pain syndrome,so there's no doubt it's a real thing and recognised.

The brain is an highly complex organ, it can create physical symptoms just from under going constant emotional or psychological stress. (without any underlying physical condition being present)

It can also create new pathways around damaged areas (Neuroplasticity) so people can recover from brain injury and strokes. (though it's not known why this doesn't always happen for everyone).

What seems common in a lot of neurological and pain syndromes are links to the endocrine and immune system. Therefore it maybe worth getting thyroid levels tested, checking for adrenal problems, finding foods or supplements that tend to naturally reduce inflammation levels in the body as reducing inflammation tends to lead to a reduction in pain which is basically how the cortisteriods work.

Painkillers only give temporary relief and don't tend to address the initial issue. so if your issue is you have a condition whereby your immune system is attacking your body, then a more successful result maybe trying a treatment that directly makes the immune system stronger and therefore work more efficiently.

So called 'official medical procedures' that people put such importance on (ie ones you get from your GP's or specialists) alot of the time tend to only relieve the symptoms.

I don't know whether its because its a cost issue (thats the cheapest option that area will approve for that patient) or because GP's get paid per patient so if they cure you quickly they lose money if you no longer need their prescriptions or because they genuinely don't know or haven't really thought about how to cure your symptoms for you because they've just got so many patients to get through, they never get opportunity to study any one patients case in detail.

I've been the official route and got nowhere for years, I went the unofficial route (doing my own research and experimenting with supplements and other theories) and I've had success in improving on my original level of disability from neurological causes.

I just think it pays to keep an open mind, other non-traditional therapies can be just as helpful and have a lot less side effects than drugs Dr's prescribe for some conditions.
TessA
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27-07-2019, 09:59 AM
19

Re: Fibromyalgia

It was mentioned a lot in the fybro group about the brain producing too much adrenaline and other hormones exacerbated by stress, causing adrenaline production. It doesn't mean it's "all in the mind" in other words imaginary, it's the brain producing too much of hormones and chemicals which cause the body to be painful.
I find distraction helpful, opiates etc. can be addictive and the more you take the more you need as the pain doesn't get "satisfied".
tarantula
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27-07-2019, 12:06 PM
20

Re: Fibromyalgia

Our middle daughter suffers from this unpleasant condition.
 
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