15-05-2018, 01:40 PM
831
Re: I've had my chest x-ray
Originally Posted by Ffosse
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I know it's for my own good but I feel lousy. No energy.It took me ages to walk to the store today; I had to rest on a bench halfway there, same on the return journey. And that is a very short trip.
I feel that my life has been taken over by taxi trips, appointments, procedures and it's all got a bit much. They haven't asked me how I'm coping, apart from the nurse yesterday who was able to sort out my mouth ulcers. And I resent paying for all those taxi trips - I don't get any kind of benefits yet I have to use taxis - the bus stop is half a mile, uphill, in the wrong direction and I wouldn't be able to cope with it.
What about Patient Transport or Community Transport - find out about these in your area matey.
15-05-2018, 01:40 PM
832
Re: I've had my chest x-ray
Originally Posted by Ffosse
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The hospital just phoned me; they want me to come in for another methotrexate session on June 21st.This means another dismal 4 days hooked up to drips. I wish they would just leave me alone. I'm sick of all the appointments, procedures etc.
I simply want a month or two to myself. After Thursday's CT scan I have appointments next week with the nurse on Monday, the Consultant on Tuesday then chemo on the Wednesday.
15-05-2018, 01:57 PM
834
Re: I've had my chest x-ray
Originally Posted by Ffosse
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Offhand, I can't think of any - I'm so exhausted.
Why not explain, to the people who look after you, just how bad you are feeling because they may be able to offer some means of transport.
15-05-2018, 06:34 PM
836
Re: I've had my chest x-ray
Originally Posted by Ffosse
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I think I'll have to keep on getting taxis. You'd have to be really ill here to qualify for any kind of transport.
15-05-2018, 07:02 PM
838
Re: I've had my chest x-ray
Originally Posted by Ffosse
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If I'm able to move about, walk, I won't qualify for patient transport; I enquired about this recently.
15-05-2018, 07:08 PM
839
Re: I've had my chest x-ray
When I was well I used to walk to the Morrisons near the hospital and back with 2 heavy bags - 5 miles total and I wasn't even out of breath.Now I can walk up to the corner where the mosque is and have to sit on the bench to rest, perhaps 400 metres.
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