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18-07-2018, 11:06 AM
1231

Re: I've had my chest x-ray

The psychiatrist was a waste of time. Twice she asked me to leave the meeting so she could take a call on her mobile. After the second time I asked her, "why don't you have it on silent during meetings, I do with mine" She then got very flustered and apologised.

I've got another appointment with them in mid September but I'm not holding out any hope. Psychiatry generally takes a back seat to haemotology and oncology in general. Not much you can do until the primary disease is treated.
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18-07-2018, 11:16 AM
1232

Re: I've had my chest x-ray

OMG how rude to leave the phone on, let alone take a call! I would be putting in an official complaint Dreamy. You are meant to feel safe and able to talk, not come away feeling that you were in the way.
I am sorry that you did.
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18-07-2018, 12:02 PM
1233

Re: I've had my chest x-ray

She barely asked me anything at all. I don't think she even asked me how I was feeling.
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18-07-2018, 12:23 PM
1234

Re: I've had my chest x-ray

Originally Posted by Ffosse ->
She barely asked me anything at all. I don't think she even asked me how I was feeling.
Oh Dreamy, do you feel up to putting in a complaint?
It has riled me today. They get paid a LOT of money.
I am always here to listen. You have my email.
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18-07-2018, 03:37 PM
1235

Re: I've had my chest x-ray

No, I'm not putting in a complaint; her predecessor was excellent with me over a number of years, diagnosed my bi-polar, helped greatly with my panic attacks etc. I suppose with the psychiatry I'm just trying to cover all bases in my health care. Mentally I've been fine - frustrated at times, scared at others, but nothing beyond the normal parameters of a cancer patient. But things could get worse mentally for me and I'm trying to stay on top and be proactive now. I'm going to have a word with someone at the hospital tomorrow.

And Macmillan have been excellent with me, both in replying to an email and having quite a specialised phone call with one of their haemotology nurses the other night.

I've just re-read the entire thread and it was interesting to find out what happened and when. That, plus my reactions and the goodwill of other posters on here. Tomorrow's should be my last procedure. I just have another MRI and CT scan to get through and I see the Consultant on the 9th of August. I feel OK apart from the fatigue and the back pain, but I've felt a lot worse in my life. During my first cancer the chemo was a breeze, virtually no side effects; this time it's been much tougher. Also, last time I didn't have any infections just Delirium which was bad enough. I'm so glad I didn't develop Delirium this time round.

I appeared to be in remission from the Hodgkins Lymphoma, going by my 3-monthly checkups. This time around they didn't think it was cancer as the top of the spinal column would be a very strange place for a Lymphoma to appear.

Unfortunately, it turned out to be another cancer - non Hodgkins Lymphoma of which there are about 100 sub-variants. I've been lucky, though, it really is the best hospital in Britain for such cancers.
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18-07-2018, 07:22 PM
1236

Re: I've had my chest x-ray

I am glad you are so positive Dreamy.
You have always remained in my thoughts and prayers.
I will be thinking of you tomorrow. x
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18-07-2018, 08:17 PM
1237

Re: I've had my chest x-ray

Will be thinking of you tomorrow too Ffosse, try to remain as positive as you are today.
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19-07-2018, 11:45 AM
1238

Re: I've had my chest x-ray

Slightly nervous - i just hope they don't find anything wrong with my bloods beforehand.
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19-07-2018, 12:56 PM
1239

Re: I've had my chest x-ray

I've arrived and I've got my own room, at least for tonight anyway, they could move me again.
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19-07-2018, 12:57 PM
1240

Re: I've had my chest x-ray

Originally Posted by Ffosse ->
Slightly nervous - i just hope they don't find anything wrong with my bloods beforehand.
Dreamy we are rooting for you.
Stay positive my lovely.
 
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