Re: Chemotherapy

Originally Posted by Ffosse ->

I will try, it's just this not getting out much which is killing me. Places I used to go to are no longer accessible unless I stop and rest all the time. I can't remember whether or not I got side-effects from my last chemo as I developed infections and was hospitalised. I'm assuming some of my dosette drugs are steroids which generally make me feel better.

I have the same problem Ffosse, I get out of breath very quickly and keep having to rest. I think it must be caused by the chemo. I have a Blue Badge now so parking is not usually so much a problem. Do you have Macmillan nurses or something similar in Scotland?

I’ve not heard of dosette drugs, what are they?

I heard the weather is about to get warmer too, not before time!

Re: Chemotherapy

I not had a line, but a friend did , also Ive spoken to patients in the clinic who have got a line. I have also been having chemo, which did help, but for the last few months ,due to my breathing problems I have not had any treatment, but Ive had a couple of scans which shows no change in my cancer

Re: Chemotherapy

We have Macmillan nurses and blue badges - I don't drive, though.

A dosette box is a large pill tray with containers for breakfast, lunch, teatime and night for all your pills for 7 days or even longer. I've just got a 7 day one. Looking at what I have to take tomorrow morning, there are 13 tablets. That's on top of my normal medication.

Re: Chemotherapy

Deylon that is good news about your cancer, hopefully you’ll be able to continue your treatment before too long.

Re: Chemotherapy

Good luck Ffosse.

I've been through chemo and had a line for 8 months.
Keep your chin up.
I have a friend who's had countless bouts of cancer over many years and she's still here......

You can do it, just try to remain positive.

Re: Chemotherapy

It's annoying when something gets in the way of a chemo course, but the Consultant I spoke to said that it didn't really matter unless there were radical changes in the cancer.

Re: Chemotherapy

You could maybe have a Macmillan nurse though Ffosse, they are there to offer advice, only 9-5 Monday to Friday though! Someone else to talk to on the days you don’t feel your best. I know what you mean by a dosette box now, I didn’t realise that is what they are called.

Re: Chemotherapy

Well, I’ve now finished my first course of chemo. I had my ninth and last cycle yesterday. What I have noticed is that after each cycle I have felt more tired and groggy! However, I’ve signed up for more and they will continue for another few weeks I guess. I have another CT scan in three weeks and then see the consultant shortly after, so we’ll see what happens next.

I was losing quite a lot of my hair and my silver parting was getting wider and wider, so went to the hairdressers for a trim and came out with a crew cut. I hate it and can’t wait for it to grow again, trouble is it’s not growing very quickly at the moment.

Anyway apart from that I guess I’m coping quite well.

Re: Chemotherapy

Val I lost all my hair when I had chemo, but when it came back it was so soft and silky, like baby hair. Within 3 months it looked like a very short style, and after that people were astounded at how quickly it grew.
It is now back to my shoulder blades, but I don't think I will get it back to my waist.

Re: Chemotherapy

I don’t think I shall ever have long hair again Twink, and I doubt whether I shall colour it again. It’s just that I can’t do anything with it, it just stands up on end!