Re: Chari Malformation
Re: Chari Malformation
Re: Chari Malformation
Re: Chari Malformation
Caprikid, while this is a concerning diagnosis, you sound like you are well-read on the condition, and fighting the good fight. I lost a friend in high school who had a severe congenital form of it, but it is believed that she died only because she may have had a head trauma associated with it. That was in the late 1970s, so it is concerning that your physician is not taking you seriously or denying the condition altogether. I would hope that you have a neurologist rather than a general practitioner handling your case.Re: Chari Malformation
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