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A woman who believes three members of her family died from the UK's most common genetic disorder wants to see routine testing introduced.
Jenny Lees' son Jason Cloke died in 2010 aged 42 after his organs were damaged by a build up of iron.
Her mother and sister died from severe liver damage, a common symptom.
She now wants to see regular blood tests, which can pick up the condition, become more frequent.
Haemochromatosis makes the body absorb too much iron from a person's diet and affects about 250,000 people in the UK.
It was thought to lead to diabetes, liver disease and severe arthritis in about one in 100 carriers but new research from Exeter University has suggested the true level could be closer to one in 10 among female carriers, and one in five for males.
Professor David Melzer, from Exeter University, said the researchers were hoping the NHS would find routine ways of testing for it.