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Val J
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East Yorkshire
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05-04-2018, 08:46 PM
11

Re: Chemotherapy

Originally Posted by Lindyloo ->
Sometimes hubbies need a bit of help..........so, I suggest you ask him to get a cool bag and a gel pack to put in the freezer. Then when you go to the hospital, take those with you and ask him to visit the local Waitrose or M&S.......again, a shopping list needed. Don't hold back........your list is his command!!!
I’ve suggested he go into town shopping instead of sitting on a hard chair for six hours but he’ll not leave me. I think it is because on my second cycle I had an allergic reaction to the chemo and ended up staying overnight on the ward. I’m on a different type of chemo now!
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Val J
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05-04-2018, 08:53 PM
12

Re: Chemotherapy

Originally Posted by Twink55 ->
Val, first let me say that you will never feel healthy when having Chemo, because they are putting measured doses of poison into your body.... and tiredness is one of the most common side effects...... I know from the experience I shared with many others on the chemo ward!

Hickman lines are very useful when you have cancer but, wherever you are going on holiday, please make sure you have access to a hospital. My friend got an infection through hers and ended up in hospital with Sepsis, a very unpleasant illness.
Please don't worry because you will probably be fine but, if you feel ill, make sure you get to a hospital and let them know you have a Hickman line.......early treatment saved my friends life!
Twink, they can show my hubby how to flush my line and I know he is very capable but I’m just a bit nervous because I’ve heard about these infections!

I find with my chemo I have one bad week and one when I feel almost normal. I think I’m fairly lucky in this respect.
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Val J
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05-04-2018, 08:56 PM
13

Re: Chemotherapy

Originally Posted by AnnieS ->
My good friend had a terrible time on chemo. They said she was "allergic" to it. She couldn't move or eat. They put her on chemo drugs in the end and that helped. But I think the drugs are more expensive so they don't do this unless they have to.

Has anyone tried fasting before and after chemo? When my friend was going through this I did some research and apparently it helps with both the side effects and in making the treatment more effective.
AnnieS, I was allergic to my first chemo which involved intravenous and tablets. I’m now on all intravenous and it is a lot more gentle. I’ve not tried fasting, it might be difficult as I’m eating like a horse at the moment!
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Val J
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05-04-2018, 09:02 PM
14

Re: Chemotherapy

Thank you for your good wishes everyone.

I agree with Ginger helping with feeling of nausea. I like to have Wensleydale and Ginger Cheese in the fridge for such occasions. Just something tasty to nibble on often helps, cherry tomatoes, pineapple but cheese is my favourite!
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Twink55
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06-04-2018, 07:30 AM
15

Re: Chemotherapy

Originally Posted by Val J ->
Twink, they can show my hubby how to flush my line and I know he is very capable but I’m just a bit nervous because I’ve heard about these infections!

I find with my chemo I have one bad week and one when I feel almost normal. I think I’m fairly lucky in this respect.
From speaking to many people who have Chemo, I think this is fairly normal, but don't worry because a few weeks after your last session you will be aware of how much better you feel.
I attended a specialist hospital, that only cared for cancer patients, and they have many people with Hickman lines.... but only a few get Sepsis....so don't worry. My friend was put on intravenous antibiotics and started to feel better after 2 weeks. I just wanted to alert you to the fact that, if you feel ill, don't wait before seeking medical help.
Uncle Joe
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06-04-2018, 11:58 AM
16

Re: Chemotherapy

I had chemo-therapy last year (Rituxomab) for four weeks, apart from a slight feeling of 'weird' on the first occasion and they having to slow down the speed of the drip, I was fine. Unfortunately this drug didn't work for me and the Thromocytopenia returned with a vengeance. So now I have to injections in the stomach weekly with something called Romiploistin. So far it is working to kick-start my bone marrow to produce more blood platelets and I'm gradually returning to the normal platelet levels I should have. The whole process has taken a year though, to date and it probably means continuing with this regime of injections indefinitely.
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Val J
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East Yorkshire
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06-04-2018, 05:52 PM
17

Re: Chemotherapy

Originally Posted by Twink55 ->
From speaking to many people who have Chemo, I think this is fairly normal, but don't worry because a few weeks after your last session you will be aware of how much better you feel.
I attended a specialist hospital, that only cared for cancer patients, and they have many people with Hickman lines.... but only a few get Sepsis....so don't worry. My friend was put on intravenous antibiotics and started to feel better after 2 weeks. I just wanted to alert you to the fact that, if you feel ill, don't wait before seeking medical help.



Thank you Twink, your friend was very lucky. They did tell me on the unit about the risk of infection, I think they said if it were to happen it would be within 30 minutes of treatment and to seek medical help immediately.
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Val J
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East Yorkshire
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06-04-2018, 05:58 PM
18

Re: Chemotherapy

Originally Posted by Uncle Joe ->
I had chemo-therapy last year (Rituxomab) for four weeks, apart from a slight feeling of 'weird' on the first occasion and they having to slow down the speed of the drip, I was fine. Unfortunately this drug didn't work for me and the Thromocytopenia returned with a vengeance. So now I have to injections in the stomach weekly with something called Romiploistin. So far it is working to kick-start my bone marrow to produce more blood platelets and I'm gradually returning to the normal platelet levels I should have. The whole process has taken a year though, to date and it probably means continuing with this regime of injections indefinitely.
Uncle Joe, I have one injection in my stomach each time I go for my chemo, I can't remember what it is for but I hate it, its the only bit that hurts! Do you go to the hospital for your injections or does the district nurse visit?
Uncle Joe
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07-04-2018, 10:18 AM
19

Re: Chemotherapy

Originally Posted by Val J ->
Uncle Joe, I have one injection in my stomach each time I go for my chemo, I can't remember what it is for but I hate it, its the only bit that hurts! Do you go to the hospital for your injections or does the district nurse visit?

Yes Val darlin' - I have to attend my local hospital because they have to do a blood test first - three vials of blood, one of which is to test the number of platelets.

Whilst I was actually in hospital last year, the Consultant took me off of my Warfarin and swopped it for Tensaparin which had to be injected into the stomach. On release from hospital, they arranged for these injections to continue to be administered by the District Nurses. After about three weeks, my stomach looked like I'd gone five rounds with Mohammed Ali.
Val J's Avatar
Val J
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Val J is offline
East Yorkshire
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07-04-2018, 12:52 PM
20

Re: Chemotherapy

I have my bloods and line flushed done at the local hospital too which saves a trip to Scarborough. The district nurse could do them but I could be waiting in all day, at least I get an appointment at the hospital and the staff are lovely.

Unfortunately our newish hospital in town is being run down in favour of Scarborough and York, which is a great pity particularly due to the elderly population here.
 
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