Re: What I've been up to
Just a bit of an update re my husband Keith who has Motor Neurone Disease. We went to the Royal Preston Hospital on Wednesday to see the doctor who had first put him on a ventilator. The doctor was really pleased with Keith's numbers saying that if he didn't know that he had MND he wouldn't be able to tell from the oxygen and carbon monoxide stats in his blood.
Of course when you get positive input you feel positive and this has helped Keith no end as he is now aware that he is managing his illness well.
I would like to ask people to have a look at the MND Association and maybe find out a little more about this 'bastard' of a disease. Although the disease is not well known it has touched the lives of many people.
http://www.mndassociation.org/?utm_s...FamWtAodM2AA8w
I am learning more about this illness and I have to say I am afraid of the future although Keith is so positive and is so interested in putting together a programme which will enable and empower people with the disease to make their life quality and environment decisions known even when they lose their voice.
Voice recognition and eye tracking technology is there and it can be put together to help so many. These things have to be structured so that they are not money making technologies but are out there for the NHS or MND to give to people to learn as soon as they are diagnosed.