Re: What I've been up to
I know what you are saying Celyn and I do understand. At the moment Keith wants to fight this thing and we do get a lot of support. Further down the line I am sure that I will get my head around the fact that although research is going on it will never be enough. Keith really fears that when he is losing ability to communicate he will have put things in order and will have got some way to make his wishes known when it comes to his comfort and daily needs.Re: What I've been up to
Michael fights non stop Cate. This disease brings out the fighting spirit in thee person who has the disease. So many permutations of this disease. Keith may not lose the ability to communicate. Michael's voice is only now starting to go after 8 years. He has Dragon talk on his laptop which he controls with his mouth.Re: What I've been up to
I am looking forward to the day that we can PM, I will then give you my email address and we can speak privately.Re: What I've been up to
"Just a bit of an update re my husband Keith who has Motor Neurone Disease. We went to the Royal Preston Hospital on Wednesday to see the doctor who had first put him on a ventilator. The doctor was really pleased with Keith's numbers saying that if he didn't know that he had MND he wouldn't be able to tell from the oxygen and carbon monoxide stats in his blood"Re: What I've been up to
I am always glad that the day arrived when I joined the OFF the messages and kind words that I receive from you all is unbelievably comforting. Family and friends are there but 'we don't always put into words' what we are feeling. Here I can be what I need to be and know that I will receive support. Considering you are all complete strangers to me it makes it even better. Thank you all so much. Azz has allowed Celyn and me to PM so we will keep our conversations more private but I will always be back to let you know how things are going with me and Keith's life.Re: What I've been up to
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