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17-07-2016, 03:19 PM
31

Re: 24, 23, 22.....

Originally Posted by Celyn ->
I know how daunting it is Tpin as my husband has just returned home after 8 months in Hospital. Jumping through hoops is an understatement, and a lot of head bashing goes on (on your part ) It will take a few weeks to settle down and you just have to stay calm (easier said than done)
It is and I can imagine it'll take a while to get into a routine.
Thanks Celyn

Hope all is as well as can be, for you and hubby.
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17-07-2016, 03:22 PM
32

Re: 24, 23, 22.....

Originally Posted by Celyn ->
I know how daunting it is Tpin as my husband has just returned home after 8 months in Hospital. Jumping through hoops is an understatement, and a lot of head bashing goes on (on your part ) It will take a few weeks to settle down and you just have to stay calm (easier said than done)
I am really glad he is home Celyn. Terry Celyn is one of the ladies I mentioned to you a few weeks back, listen to her advice she has a lot of experience in caring for a loved one at home.
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17-07-2016, 03:23 PM
33

Re: 24, 23, 22.....

He has MND and is kept alive on a ventilator and now completely *locked in* as some people aleady know on here. We jog along though from day to day with house full of nurses.
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17-07-2016, 03:32 PM
34

Re: 24, 23, 22.....

Originally Posted by Celyn ->
He has MND and is kept alive on a ventilator and now completely *locked in* as some people aleady know on here. We jog along though from day to day with house full of nurses.
Sorry to hear that Celyn, I now remember your situation having read Diane's post.

I know, to a degree, how hard MND can be as a friend of mine suffered from it.

Best wishes to you both.
Terry
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17-07-2016, 05:26 PM
35

Re: 24, 23, 22.....

It was a battle Twink55.He was being theatened with eviction from the hospital as the CCG were not setting up a package, and they wanted their bed once his problems were sorted. They were going to ship him off to a *facility* where everyone was in a vegative state. At the 11th hour, due to the fact that he had septic shock and almost died, a package was set up with a day nurse, night nurse, and carer from 8 a.m. until 4 a.m. Working well at the moment.

If I can give any advice Tpin, I will be very happy to do so. It can be a lonely place sometimes. Unless you are or have been in that situation it is hard to understand how demanding it can be. On the other hand there are many *ups* that balance out the bad days. Once you get into a routine, which will take a few weeks, then life will be easier.

Celyn
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17-07-2016, 05:38 PM
36

Re: 24, 23, 22.....

Originally Posted by Celyn ->
It was a battle Twink55.He was being theatened with eviction from the hospital as the CCG were not setting up a package, and they wanted their bed once his problems were sorted. They were going to ship him off to a *facility* where everyone was in a vegative state. At the 11th hour, due to the fact that he had septic shock and almost died, a package was set up with a day nurse, night nurse, and carer from 8 a.m. until 4 a.m. Working well at the moment.

If I can give any advice Tpin, I will be very happy to do so. It can be a lonely place sometimes. Unless you are or have been in that situation it is hard to understand how demanding it can be. On the other hand there are many *ups* that balance out the bad days. Once you get into a routine, which will take a few weeks, then life will be easier.

Celyn
How kind.
Thank you very much for the offer.
Terry
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17-07-2016, 06:51 PM
37

Re: 24, 23, 22.....

Originally Posted by Celyn ->
It was a battle Twink55.He was being theatened with eviction from the hospital as the CCG were not setting up a package, and they wanted their bed once his problems were sorted. They were going to ship him off to a *facility* where everyone was in a vegative state. At the 11th hour, due to the fact that he had septic shock and almost died, a package was set up with a day nurse, night nurse, and carer from 8 a.m. until 4 a.m. Working well at the moment.

If I can give any advice Tpin, I will be very happy to do so. It can be a lonely place sometimes. Unless you are or have been in that situation it is hard to understand how demanding it can be. On the other hand there are many *ups* that balance out the bad days. Once you get into a routine, which will take a few weeks, then life will be easier.

Celyn
Celyn I would never want to battle with you on a subject like this ( don't tell Tpin he thinks I am scary). For whatever reason you managed to get him home I am thrilled because he will be happier there with you and the family to support him... and so will you be happier.
 
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