Can you help Holly?? (medical pics)
Please take a few minutes to read about Holly. This isnt just fundraising but of course its wonderful if you can help with a pound or two... its also to help raise awareness.. Thank you for reading this.
Hi, my friend is about to do the great north run in aid of the charity DEBRA! This charity is set up to help people with the rare but very painful skin condition referred to for short ad EB ( the butterfly children ) so named because there skin is as fragile as a butterflies wings!! Bangs or friction causes skin to blister horrendously or simply peel off!! Leahs daughter has this and has to live every day life not knowing if she is going to awake to eyeballs that have blistered and stuck to her eyelid! Or just to trip and fall onto carpet or grass can cause blisters nearly the full length of legs and arms!! Holly is such a brave little girl, I would really appreciate if you would visit the link below, if only to raise awareness or to very kindly donate! This money pays for specialist nurses country wide and for things like research to find a cure or ways to make there lives more comfortable!! I appreciate you taking the time to read this and heres some pictures that show what it can do
Http://www.dermnetnz.org/systemic/ep...s-bullosa.html
Thank you
www.justgiving.com/leahanddonnaforhollie