07-02-2014, 05:07 PM
1
Brain Tumours
Does anyone have any experience to do with Brain tumours?Our youngest son - my wife's youngest - has had MRI scans which have revealed a brain tumour and it seems to be from excess hormones emanating from the pituitary gland.
In his case the doctors are saying that they've never seen such a high level of this hormone before - NEVER.
Of course this means that my wife is extremely worried, despite all I am trying to say to alleviate that worry for the simple reason that it's a BRAIN TUMOUR we're talking about.
She's hovering around me right now telling me she's not worried...........
From what I've just read on the 'Net this is treated with chemicals to reduce the over-production of the hormone GnRH so I'm hoping this will allay her fears - a little, but any personal experience would be handy to pass on. Thanks. stevmk2
07-02-2014, 05:29 PM
2
Re: Brain Tumours
Hi Steve, I have experience of a adenoma of the Pituitary Gland.They will probably put him on a drug called Dostinex. Don't let him
go on Bromocriptine as that doesn't always work. They are nearly
always benign not cancerous. So try not to worry until they have
done all of the tests.
It produces too much Prolactin in the blood which is probably why they know what he has because they find it in the blood. The person I know with
it had a count of 1300 and now because of the Dostinex its down to
normal of 234. No operation is needed if it is benign and you are best
telling him to just take the tablet. You get 2 a week to take so 8 a month.
This drug works very well and the only side effect is you cant drink that
day you take it as it will make you nauseous or even sick. So if he drinks
he will have to decline 2 days a week which the Doctor will say great to
I am sure. If you want to ask me anymore questions Steve send me
a PM and I will go into more details for you.
Good luck to the lad x
07-02-2014, 05:51 PM
3
Re: Brain Tumours
Originally Posted by BowieEyes
->
Hi Steve, I have experience of a adenoma of the Pituitary Gland. They will probably put him on a drug called Dostinex. Don't let him
go on Bromocriptine as that doesn't always work. They are nearly
always benign not cancerous. So try not to worry until they have
done all of the tests.
It produces too much Prolactin in the blood which is probably why they know what he has because they find it in the blood. The person I know with
it had a count of 1300 and now because of the Dostinex its down to
normal of 234. No operation is needed if it is benign and you are best
telling him to just take the tablet. You get 2 a week to take so 8 a month.
This drug works very well and the only side effect is you cant drink that
day you take it as it will make you nauseous or even sick. So if he drinks
he will have to decline 2 days a week which the Doctor will say great to
I am sure. If you want to ask me anymore questions Steve send me
a PM and I will go into more details for you.
Good luck to the lad x
07-02-2014, 11:08 PM
4
Re: Brain Tumours
Originally Posted by stevmk2
->
Does anyone have any experience to do with Brain tumours?Our youngest son - my wife's youngest - has had MRI scans which have revealed a brain tumour and it seems to be from excess hormones emanating from the pituitary gland.
In his case the doctors are saying that they've never seen such a high level of this hormone before - NEVER.
Of course this means that my wife is extremely worried, despite all I am trying to say to alleviate that worry for the simple reason that it's a BRAIN TUMOUR we're talking about.
She's hovering around me right now telling me she's not worried...........
From what I've just read on the 'Net this is treated with chemicals to reduce the over-production of the hormone GnRH so I'm hoping this will allay her fears - a little, but any personal experience would be handy to pass on. Thanks. stevmk2
A few years later she had to have the operation repeated again successfully BUT sometime during or immediately after the operation she had a stroke in the brain stem and now she is disabled and lives in a high dependency retirement home. However she is still alive and not blind and the stroke was a one in a million chance and is a possibility in any major operation.
08-02-2014, 01:18 PM
5
Re: Brain Tumours
Sorry to hear about your wife Bruce that's a sad story.That's why I know to keep taking the tablets. They shrink the tumour and keep the Prolactin low in the blood.
The pressure on the optic nerve is a possibility if it grows and also a stroke if the Pituitary gland is operated on. As with most tumours its best to catch them early so treatment can be given straight away.
With treatment and keep taking the tablets routine it can be a very manageable tumour.
08-02-2014, 05:18 PM
6
Re: Brain Tumours
Originally Posted by BowieEyes
->
Sorry to hear about your wife Bruce that's a sad story.That's why I know to keep taking the tablets. They shrink the tumour and keep the Prolactin low in the blood.
The pressure on the optic nerve is a possibility if it grows and also a stroke if the Pituitary gland is operated on. As with most tumours its best to catch them early so treatment can be given straight away.
With treatment and keep taking the tablets routine it can be a very manageable tumour.
Sorry to read of all your ex-wife's problems Bruce. Must have been hard at the time. stevmk2
09-02-2014, 02:03 AM
7
Re: Brain Tumours
Originally Posted by stevmk2
->
Our son's been told that there's no pressure as yet on the optic nerve BowieEyes and as far as I know they're talking in terms of chemical means at the moment rather than operations so my wife's a bit less worried.Sorry to read of all your ex-wife's problems Bruce. Must have been hard at the time. stevmk2
She was/is their mother whereas for me she was a past mistake (harsh I know) so I was in a difficult position when they sought my advice but that was nothing compared to the position they were in. I had brought them up when she left so they were much closer to me than her.
09-02-2014, 02:26 PM
8
Re: Brain Tumours
Originally Posted by stevmk2
->
Our son's been told that there's no pressure as yet on the optic nerve and as far as I know they're talking in terms of chemical means at the moment rather than operations so my wife's a bit less worried.
Your son's case is unique to him, there are many types of tumours and only your son's medical team have the information on the type of tumour he has and the treatment path they need to take.
I hope that when the decision is made on the treatment he needs that it all goes well.
11-02-2014, 06:14 PM
9
Re: Brain Tumours
Originally Posted by Pats
->
stevmk2.Your son's case is unique to him, there are many types of tumours and only your son's medical team have the information on the type of tumour he has and the treatment path they need to take.
I hope that when the decision is made on the treatment he needs that it all goes well.
'Phone's just rung so lucky we haven't got a dog or cat - no chance if you're in the way! stevmk2
21-02-2014, 12:21 PM
10
Re: Brain Tumours
Our youngest son rang yesterday to say that the medication he's now on is working and the levels of proteins responsible for the tumour have gone down considerably.He has another MRI in a month but the signs are encouraging the Doctor said.
Big sighs of relief in this household! stevmk2
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