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Omah
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20-09-2019, 05:41 PM
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Boy with skin-peeling condition is sent 18,000 birthday cards

https://www.bbc.co.uk/news/av/health...nt-18000-cards (video - may upset some viewers)

Rhys Williams, from Bolton, has epidermolysis bullosa, a painful, life-limiting condition that has left him unable to walk.

As he turns 14, his mother has made an appeal for people to send him birthday cards to help improve his mood.

He has received 18,000, which he says has made him feel "a lot better".
Rhys suffers severe pain all day, every day - a condition we can't imagine .....

When I worked for DWP on DLA/AA at Warbreck, in Blackpool, I was seconded to the extreme cases section, where one of my cases was a young child with just such a condition - the details of the case were so distressing that I terminated my secondment as soon as possible .....

I'm glad that 18,000 people took the time to think about him .....
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20-09-2019, 10:05 PM
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Re: Boy with skin-peeling condition is sent 18,000 birthday cards

I just cannot imagine the pain that poor lad has been through every day of his life

Life can be so cruel for some, it makes you sit back and think how fortunate many of us are with our health.

I'm so pleased those 18,000 birthday cards sent to him by those thoughtful people have been a comfort to him.

Brave boy.
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20-09-2019, 10:07 PM
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Re: Boy with skin-peeling condition is sent 18,000 birthday cards

Originally Posted by Mags ->
I just cannot imagine the pain that poor lad has been through every day of his life

Life can be so cruel for some, it makes you sit back and think how fortunate many of us are with our health.

I'm so pleased those 18,000 birthday cards sent to him by those thoughtful people have been a comfort to him.

Brave boy.
I agree Mags, we do tend to moan about unimportant things don't we. I feel so sorry for him but pleased that he knows that some people really do care.
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Lorna Doone
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20-09-2019, 10:16 PM
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Re: Boy with skin-peeling condition is sent 18,000 birthday cards

I watched a documentary back in 2003/4 about Jonny Kennedy who suffered the same condition. It left a lasting impression on my mind, such an unbearably cruel illness during which Jonny did what he could to raise awareness and money. If my memory serves me right, he died in his wheelchair on a train back from London, where he received recognition for his efforts.

Really one of the most tragic programmes ever. Well done to all the people who sent the cards to this little boy,this world is just tooo cruel for some.
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keezoy
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21-09-2019, 03:01 AM
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Re: Boy with skin-peeling condition is sent 18,000 birthday cards

Makes you feel very lucky. Makes you look at your own life and think about how little you really have to whinge about. Kids are amazing the way they handle serious illness and pain. They are an inspiration. Go the boy!
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